No More Suffering In Silence!

  EhlersDanlos syndrome (EDS) is a genetic disorder. It wasn't anything you did, anything you ate, anyone you spent time with. You simply had the bad luck to draw the genetic short straw in life.

Doctors haven't found all the genes that cause EDS, but they do know that in people with EDS, those flawed genes disrupt the normal production of collagen. Collagen is a protein which acts like a glue, holding the body together. When collagen production is flawed, as it is in people with EDS, a person's connective tissues (skin, ligaments, tendons, blood vessel walls, lining of joints, etc.) are affected.

We do not have to face this disease alone, and we definately do not need to suffer in silence! How long have we all suffered silently, afraid of "burdening" others, afraid of people not understanding, or doctors not believing us? No more! A cure will never be found if we remain silent!